Andrew had a tough day yesterday. He just had a hard time cutting back the medicine and then again when we tried a little pediasure. On top of that, he wasn't sleeping. So last night we took another step back. Went up again on the sedative medications and went back up on his oxygen flow rate. This helped him get some much needed sleep! We are so thankful that he hasn't had any big complications; his body was just letting us know that he needs to move a little more slowly right now. A lot has changed in there in the past week. This morning me made a deal that he could watch something on the iPad after we brushed his teeth, but as you can see, he chose to play Mario Brothers instead.This is amazing because Andrew has been very weak and shaky in his upper body! So for now we say hurray for sleep and hurray for Mario Brothers!
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