Today was two steps forward, one step back. We spent a bit of time in the CVICU with Andrew when he was a baby, so we know about how these things can go. It might even appear like we are taking it all in stride, but honestly we are the same parents risking our hearts hoping at each step. It's still such a blow when things don't move along they way we want them too (best case scenario is what we want for EVERYTHING - who wouldn't, right). And yet, God has demonstrated his mercy in Andrew through so many difficult situations. So we are trying to be patient. Trusting God for Andrew's good. Trusting the doctors and nurses to 'listen' to Andrew and move him forward when his body is ready. So thankful for them and all the support we have in all of you.
The details: Andrew's irregular heart rate still needs the pacemaker support. When they tried to scale back the vent, he was not taking big enough breaths on his own. He didn't pee without the catheter, so that went back in this evening and he needs to get some fluids out. Positives: his blood pressure has been stable in spite of all the rhythm ups and downs today. He is starting IV nutrition tonight to help his body heal. He did great getting the two chest tubes out and the other chest tubes are still productive, so having them is a support to him. He is the cutest thing.
My sweet husband has agreed to split the night with me so one of us is there with him in case he starts waking up. He did a few times today and if he needs a dose of parent, we want to be there STAT. Mostly, this is for my peace of mind tonight and Steve is a sweetheart. On that note, I better go to sleep.
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