Just playin w/daddy

mohawk....sort of...

Some pics

Tuesday

Well, Andrew is doing good today, no real issues coming up. I think I'm just gonna put up some picks and video from earlier today. As far as we know we are still on for coming home on Friday

Monday

Here is Andrew in the swing last night. He didn't seem too impressed, but he was pretty tired. The rest of us were really excited about it though. It's funny what a baby will bring out in a group of adults. Good times! Not much new today. Working on weening some more medicine & trying to get ready for discharge, hopefully Friday. Still has a bit of a fever, but they adjusted some things to try to get rid of that. Please keep praying for Andrew, especially for his pulmonary veins to stay open - that's the big one. Thanks for EVERYTHING!

p.s. Happy Birthday, Aunt Gina!!! I love you!!!

Sunday

My boys.

Daddy & Dizzy

Well, we are shooting for Friday, seems like a good day to go home. So we need to get Andrew used to sitting in his car seat, he has to pass a car seat trial (all strapped in, etc.) before we can take him home, so here is a picture of his first time trying it out. He definitely likes it - he has been zonked out since about 30 seconds after we put him in it. He just snuggled right up to the side of it.

Saturday

Our little washcloth head. We were trying to help him cool down last night with his fever. He's still got one today, but not nearly as high as yesterday. We're pretty sure it's due to withdraws. Poor kid, but they are working on figuring out where he needs to be to be comfortable right now, then we can work on weening from there.

He was hiding. Too cute!!!

Thanks to everyone for your prayers & endless support. Vivian for the encouragement at work today, Baron & Claudia for sharing dinner with us tonight, & for the comments posted - it really is an encouragement to read each day.

Friday

Here's a video from wed night. Andrew is a trip - he likes his breathing treatments. The RT said she thinks some kids like the feel of the cold air in their faces. I guess it's a good thing he likes them since he needs them right now. He looks pretty good today. He's got a fever though & we can't figure out why. Again, maybe it's a virus, but we are hoping it's more because of all the changes his body has been through lately. Either way we are praying it's short lived. I think it's about time Andrew felt better! Thanks for your continued support! It's a long time to stand by somebody & we are grateful to have you all standing firm with us.

p.s. thanks Machie & Papa or comming to visit yesterday evening, & Marshall for stopping by this morning.

Thursday

Andrew is still doing well. Sleeping a lot, which he needs to recover & regain some strength. His voice is just starting to come back - music to our ears. We are hoping he moves right along with his recovery so we can spend some time at home with our boy. We still need prayers, particularly that his pulmonary veins stay open. It's not an easy situation, but when you've got such an incredible son you can't help but smile & thank God for him. Thank you all, for everything.